Today has been a bit special. For a start, it's my birthday! And second, we went to a brilliant party. Not for me, but for PKU families. We met (some for the second time) a 3 year old girl, an 18month-ish year old boy and an 8 month old girl with PKU and all their siblings and parents. It was great and I hope that they will become friends for us all, especially Gremlin when she is older.
All the children were fantastic and it was so reassuring to see that. It would have been impossible to tell who had it and who did not.
I also learnt a lot more about exchanges. 1g of protein is 1 exchange and all the children were on different amounts based on their own blood results - 10, 6.5 and 6. We don't know yet how many Gremlin will have but her dietician hinted it will be around 5. Quavers are half an exchange, Hula Hoops 1 exchange and Pom Bears about 2/3rds! That's snacks sorted anyway!
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