About Me

Hertfordshire, UK
I am a very lucky Mum to two beautiful daughters, known here as Moomin and Gremlin. My second gorgeous girl, Gremlin (above), has PKU (Phenylketonuria) and has introduced us to a whole new world! This blog is intended to record our journey with regards it, particularly focusing on food and eating.

Wednesday, 21 April 2010

25 weeks - The first bottle starts to drop too

I am thrilled that Gremlin is really enjoying eating. She is now eating 3 meals a day. A typical menu would be:

Breakfast- 'Hot Breakfast' porridge with mushed banana
Lunch- Aminex Rusk with warmed PKU Start milk followed by half a jar of fruit puree
Dinner - 4/5 ice cubes worth of pureed vegetable then remainder of fruit puree jar

In addition she is still having 4 sets of bottles a day. More often than not she takes no PKU Start milk in her second bottle at all. I am now giving her 2 sachets of gel per day and offer some before each meal.

However it seems she has almost taken to food too well as this week she starts to refuse to finish her first bottle. This bottle contains regular formula and is essential to give her the small level of phe she needs and can manage. Eventually measured amounts of food containing protein will provide this phe. They are known as 'exchanges' but we are not due to learn about them until our Stage 2 weaning lesson at GOSH on 12th May. Although it is a struggle, we do manage to get all the necessary formula into her by adding to later feeds/extra night time bottles but I phone GOSH to ask what we should do if we cannot one day, as the 12th May still seems like forever away. They reassure me that should it come to that we can introduce some simple exchanges which they can teach us about over the phone. Phew and roll on 12th May.

1 comment:

  1. Blimey! Sounds like you are doing a fab job. I love the picture at the top by the way!

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